An important element in dealing with HIV/AIDS is to disclose of its status to others. One of the problems faced by HIV/AIDS sufferers in disclosing their status is finding people they can trust, who can keep information about their HIV/AIDS status and not divulge it to other parties without their permission. Not many people can accept them without prejudice and stigma. This article discusses the communication efforts carried out by female AIDS activists in the community as co-owners who receive information from people with HIV/AIDS and subsequently become confidants and assist them in medical and psychological and social aspects. This study used a qualitative method. Data was collected through in-depth interviews with 9 Community AIDS activist women from 7 regions. The results of the study reveal the process of housewives transforming into community AIDS activists, how they get personal information about the status of HIV/AIDS and eventually become co-owners of information who eventually become confidants, have responsibilities and help people with HIV/AIDS in health, psychological and social aspects.

1. Afifi, T. D. (2003). “Feeling caught” in stepfamilies: Managing boundary turbulence through appropriate communication privacy rules. www.sagepublications.com
2. Ahmadi, D., & Adzhani, A. V. (2019). The Use Instagram with Visiting Interest: The correlation between the use @littlecollins.bdg Instagram with Visiting Interest. Journal of Physics: Conference Series, 1375(1), 1–6. https://doi.org/10.1088/1742-6596/1375/1/012055
3. Ahmadi, D., Rachmiatie, A., & Nursyawal. (2019). Public Participation Model for Public Information Disclosure. Jurnal Komunikasi: Malaysian Journal of Communication, 35(4), 305–321. https://doi.org/10.17576/JKMJC-2019-3504-19
4. Ahmadi, D., Sulaiman, A. I., Runtiko, A. G., Noegroho, A., Ar Raqi, R. I., Maryani, A., Yuniati, Y., & Yulianita, N. (2023). Marketing Communications for Tourism Development in Ecoethno Leadcamp Site. Studies in Media and Communication, 11(4), 67–77. https://doi.org/10.11114/SMC.V11I4.5909
5. Allen, M. W., Walker, K. L., Coopman, S. J., & Hart, J. L. (2007). Workplace surveillance and managing privacy boundaries. Management Communication Quarterly, 21(2), 172–200. https://doi.org/10.1177/0893318907306033
6. Berger, C. R., Roloff, M. E., & Petronio, S. (2016). The International Encyclopedia of Interpersonal Communication, First Edition. Edited Communication Privacy Management Theory. https://doi.org/10.1002/9781118540190.wbeic0132
7. Berger, C. R., Roloff, M. E., & Romo, L. K. (2016). The International Encyclopedia of Interpersonal Communication, First Edition. Edited Family Secrets. https://doi.org/10.1002/9781118540190.wbeic0218
8. Bhattacherjee, A. (2012). Social Science Research: Principles, Methods, and Practices. In Scholar Commons (2nd ed., Vol. 1). University of South Florida. http://scholarcommons.usf.edu/oa_textbookshttp://scholarcommons.usf.edu/oa_textbooks/3
9. BPS. (2023). Statistical Yearsbook of Indonesia. https://www.bps.go.id/publication/2023/02/28/18018f9896f09f03580a614b/statistik-indonesia-2023.html
10. Chang, Y. (2009). A Qualitative Study of Temporary Reentry from Significant Others’ Perspective. International Journal of Intercultural Relations, 33(3), 259–263. https://doi.org/10.1016/j.ijintrel.2009.02.002
11. Charoensap-Kelly, P., Mestayer, C. L., & Knight, G. B. (2020). To Come Out or Not to Come Out: Minority Religious Identity Self-Disclosure in the United States Workplace. Management Communication Quarterly, 34(2), 213–250. https://doi.org/10.1177/0893318919890072
12. Creswell, J. W., & Creswell, J. D. (2018). Research Design: Qualitative, Quantitative and Mixed Methods Approaches (5th ed., Vol. 5). Sage Publications Inc.
13. Derlega, V. J., Metts, S., Petronio, S., & Margulis, S. T. (1993). Self Disclosure (C. Hendrick & S. S. Hendrick, Eds.; 1st ed., Vol. 1). Sage Publications, Inc.
14. Docan-Morgan, S. (2011). “They don’t know what it’s like to be in my shoes”: Topic avoidance about race in transracially adoptive families. Journal of Social and Personal Relationships, 28(3), 336–355. https://doi.org/10.1177/0265407510382177
15. Earnshaw, & Chaudoir. (2009). From Conceptualizing to Measuring HIV Stigma: A Review of HIV Stigma Mechanism Measures. AIDS and Behavior.
16. Gaskins, S. W., Foster, P. P., Sowell, R. L., Lewis, T. L., Gardner, A., & Parton, J. M. (2012). Making Decisions: The Process of HIV Disclosure for Rural African American Men. American Journal of Men’s Health, 6(6), 442–452. https://doi.org/10.1177/1557988312439405
17. Greene, K., Derlega, V. J., Yep, G. A., & Petronio, S. (2003). Privacy and Disclosure of HIV in Interpersonal Relationships : A Sourcebook for Researchers and Practitioners (1st ed., Vol. 1). Lawrence Erlbaum Associates, Inc., Publishers. www.erlbaum.com
18. Griffin, E. (1991). A First Look at Communication Theory (G. G. Sparks & A. M. Ledbetter, Eds.; 8th ed., Vol. 8). Texas Christian University.
19. Guo, J. (2016). Stigma: An Ethnography of Mental Illness and HIV/AIDS in China. 2016. World Century Publishing Corporation. World Century Publishing Corporation.
20. Helens-Hart, R. (2017). Females’ (Non)Disclosure of Minority Sexual Identities in the Workplace From a Communication Privacy Management Perspective. Communication Studies, 68(5), 607–623. https://doi.org/10.1080/10510974.2017.1388827
21. Hernandez, R. (2018). Understanding Sorority Women’s Privacy Management About Condom Use. Qualitative Health Research, 28(8), 1342–1353. https://doi.org/10.1177/1049732318766506
22. Kelly, A. E. (1999). Revealing personal secrets. Current Directions in Psychological Science, 8(4), 105–109. https://doi.org/10.1111/1467-8721.00025
23. Laschober, T. C., Serovich, J. M., Brown, M. J., Kimberly, J. A., & Lescano, C. M. (2019). Mediator and moderator effects on the relationship between HIV-positive status disclosure concerns and health-related quality of life. AIDS Care, 31(8), 994–1000. https://doi.org/10.1080/09540121.2019.1595511
24. Latzoo, C. (2013). Managing and controlling HIV/AIDS talk among Ghanaians living with HIV/AIDS. In Communicatio (Vol. 39, Issue 3, pp. 319–332). Routledge. https://doi.org/10.1080/02500167.2013.777352
25. Lewis, C. C., Matheson, D. H., & Elizabeth Brimacombe, C. A. (2011). Factors influencing patient disclosure to physicians in birth control clinics: An application of the communication privacy management theory. Health Communication, 26(6), 502–511. https://doi.org/10.1080/10410236.2011.556081
26. Littlejohn, S. W., & Foss, K. A. (2009). Encyclopedia of Communication Theory (S. W. Littlejohn & K. A. Foss, Eds.). SAGE Publication Inc.
27. McBride, M. C., Thorson, A. R., & Bergen, K. M. (2020). Privacy Rule Decision Criteria: An Examination of Core and Catalyst Criteria that Shape Disclosures in the Work-Spouse Relationship. Management Communication Quarterly, 34(4), 527–557. https://doi.org/10.1177/0893318920949328
28. Miller, A. N., & Rubin, D. L. (2007). Factors leading to self-disclosure of a positive HIV diagnosis in Nairobi, Kenya: People living with HIV/AIDS in the Sub-Sahara. Qualitative Health Research, 17(5), 586–598. https://doi.org/10.1177/1049732307301498
29. Moghadam, Z. B., Rezaei, E., Sharifi, B., Nejat, S., Saeieh, S. E., & Khiaban, M. O. (2018). The Effect of Empowerment and Educational Programs on the Quality of Life in Iranian Women with HIV. Journal of the International Association of Providers of AIDS Care, 17. https://doi.org/10.1177/2325958218759681
30. Ngula, K. W., & Miller, A. N. (2010). Self-disclosure of HIV seropositivity in Kenya by HIV-positive Kamba men and their families. Southern Communication Journal, 75(4), 328–348. https://doi.org/10.1080/1041794x.2010.504443
31. Nichols, W. L. (2012). Deception Versus Privacy Management in Discussions of Sexual History. Atlantic Journal of Communication, 20(2), 101–115. https://doi.org/10.1080/15456870.2012.665346
32. Pederson, J. R., & McLaren, R. M. (2016). Managing information following hurtful experiences: How personal network members negotiate private information. Journal of Social and Personal Relationships, 33(7), 961–983. https://doi.org/10.1177/0265407515612242
33. Petronio, S. (2002). Boundaries of Privacy: Dialectics of Disclosure (D. D. Cahn, Ed.; 1st ed., Vol. 1). State University of New York Press, Albany.
34. Petronio, S. (2004). Road to Developing Communication Privacy Management Theory: Narrative in Progress, Please Stand By. Journal of Family Communication, 4(3–4), 193–207. https://doi.org/10.1080/15267431.2004.9670131
35. Petronio, S. (2008). Disclosure in Interpersonal Communication. In The International Encyclopedia of Communication. Wiley. https://doi.org/10.1002/9781405186407.wbiecd045
36. Petronio, S. (2010). Communication Privacy Management Theory: What Do We Know About Family Privacy Regulation? Journal of Family Theory & Review, 2(3), 175–196. https://doi.org/10.1111/j.1756-2589.2010.00052.x
37. Petronio, S., & Child, J. T. (2020). Conceptualization and operationalization: utility of communication privacy management theory. In Current Opinion in Psychology (Vol. 31, pp. 76–82). Elsevier B.V. https://doi.org/10.1016/j.copsyc.2019.08.009
38. Petronio, S., & Kovach, S. (1997). Managing privacy boundaries: Health providers’ perceptions of resident care in Scottish nursing homes. Journal of Applied Communication Research, 25(2), 115–131. https://doi.org/10.1080/00909889709365470
39. Petronio, S., & Martin, J. N. (1982). Validity of the Narcissistic Personality Inventory (NPI) in a psychiatric sample. In Journal of Clinical Psychology (Vol. 40).
40. Petronio, S., Sargent, J., Andea, L., Reganis, P., & Cichocki, D. (2004). Family and friends as healthcare advocates: Dilemmas of confidentiality and privacy. Journal of Social and Personal Relationships, 21(1), 33–52. https://doi.org/10.1177/0265407504039838
41. Robinson, S. C. (2019). No exchange, same pain, no gain: Risk–reward of wearable healthcare disclosure of health personally identifiable information for enhanced pain treatment. Health Informatics Journal, 25(4), 1675–1691. https://doi.org/10.1177/1460458218796634
42. Romero, L., Wallerstein, N. ;, Lucero, J. ;, & Fredine, H. (2006). Woman to Woman: Coming Together for Positive Change - Using Empowerment anda Popular Education to Prevent HIV in Women. AIDS, 18, 390405.
43. Setiadi, E., Sulaiman, A. I., Chusmeru, C., Windiasih, R., Ahmadi, D., Suyanto, E., & Wijayanti, I. K. E. (2024). Important Factors in the Development of Young Entrepreneurial Groups in Forest Honeybee Cultivation and Products. Journal of Ecohumanism, 3(3), 1196–1207. https://doi.org/10.62754/joe.v3i3.3420
44. Smith, R. A., & Hipper, T. J. (2010). Label management: Investigating how confidants encourage the use of communication strategies to avoid stigmatization. Health Communication, 25(5), 410–422. https://doi.org/10.1080/10410236.2010.483335
45. Smith, R. A., & Niedermyer, A. J. (2009). Keepers of the secret: Desires to conceal a family member’s HIV-positive status in Namibia, Africa. Health Communication, 24(5), 459–472. https://doi.org/10.1080/10410230903023501
46. Sulaiman, A. I., & Ahmadi, D. (2020). Empowerment communication in an islamic boarding school as a medium of harmonization. Jurnal Komunikasi: Malaysian Journal of Communication, 36(4), 323–338. https://doi.org/10.17576/JKMJC-2020-3604-20
47. Tenzek, K. E., Herrman, A. R., May, A. R., Feiner, B., & Allen, M. (2013). Examining the Impact of Parental Disclosure of HIV on Children: A Meta-Analysis. Western Journal of Communication, 77(3), 323–339. https://doi.org/10.1080/10570314.2012.719092
48. Xiao, Z., Li, X., Qiao, S., Zhou, Y., Shen, Z., & Tang, Z. (2015). Using communication privacy management theory to examine HIV disclosure to sexual partners/spouses among PLHIV in Guangxi. AIDS Care - Psychological and Socio-Medical Aspects of AIDS/HIV, 27, 73–82. https://doi.org/10.1080/09540121.2015.1055229
49. Yadav, S. (2010). Perceived social support, hope, and quality of life of persons living with HIV/AIDS: A case study from Nepal. Quality of Life Research, 19(2), 157–166. https://doi.org/10.1007/s11136-009-9574-z
50. Yin, R. K. (2009). Case Study Research: Design and Methods (V. Knight, S. Connelly, L. Habib, C. M. Chilton, G. Dickens, A. R. Van Deusen, S. Coates, C. Harman, & S. Adams, Eds.; 5th ed., Vol. 5). Sage.